Parallel session A-B: extra long workshops - 12.55 - 15.30 hrs
A - B1. S.M.A.S.H. (= Smoking prohibited, Move more, Alcohol in moderation, Sleep well, and Healthy nutrition): smashing ideas for a healthy life style
A - B2. Advanced exercise testing and training in rehabilitation
Parallel session B: minisymposia - workshops 14.00 – 15.30 hrs.
B3. The start of the national cerebral palsy registry in The Netherlands
B4. Home-based training in children with unilateral cerebral palsy: chances and challenges
B5. Individualized training for residents in rehabilitation medicine: A new approach by Klimmendaal-Radboudumc-Rijnstate-Sint Maartenskliniek-Tolbrug (OOR-ON)
B6. eRehabilitation: development, evaluation and implementation of eHealth in rehabilitation
B7. Neuropathic pain among people with spinal cord injury: innovations in assessment and treatment
B8. The Ronnie Gardiner Method, sets the brain in motion!
B3. Mini-symposium: The start of the national cerebral palsy registry in The Netherlands
Much is still unknown about the optimal treatment of motor disorders in cerebral palsy (CP), and there is currently a lot of diversity in the approach. CP is the main cause of physical disability in children. With the start of a national CP registry in The Netherlands in 2016, we create the basis for a national follow-up program and treatment registry for people with CP. The ultimate goal of the registry is to improve quality of treatments, reduce secondary problems and see to it that every child, and eventually adult, receives optimal treatment at an individual level, improving activities and participation on the short- and longterm. In the symposium, a multidisciplinary team consisting of a pediatric physiciatrist, pediatric neurologist and orthopedic surgeon, together with the CP registry manager and the director of the patients’ association will discuss diagnostics and (evidence for) current treatments for motor disorders in CP. We will discuss how secondary problems such as hip luxation can be prevented and treated, according to the CP guidelines, and the role of a national registry in this. The registry will be demonstrated and we will outline subsequent steps in its development with special attention to the parent/patient perspective.
Chair: Annemieke Buizer1
Speakers: Annemieke Buizer, Jeroen Vermeulen, Melinda Witbreuk, Janneke Hazelhoff, Martijn Klem
- General Introduction - Annemieke Buizer MD PhD, pediatric physiatrist, VUmc Amsterdam
- Etiology of and diagnostics in CP – Prof. Jeroen Vermeulen MD PhD, pediatric neurologist, MUMC+ Maastricht
- Treatment options in CP –how can a registry help to inform the clinician? – Annemieke Buizer MD PhD, pediatric physiatrist, VUmc Amsterdam
- Hipluxation in CP: screening and treatment according to the guidelines – Melinda Witbreuk MD PhD, orthopaedic surgeon, OLVG/VUmc Amsterdam
- The Netherlands CP registry: outline, demonstration and future steps – Janneke Hazelhoff MSc, manager Netherlands CP Registry, Amsterdam/Utrecht
- Parent and patient participation in the CP registry – Martijn Klem, MSc, director BOSK, patient organization for people with CP
B4. Mini-symposium: Home-based training in children with unilateral cerebral palsy: chances and challenges
Home-based training programs are increasingly acknowledged as important interventions for rehabilitation for children with unilateral Cerebral Palsy (CP). Clinical experiences and scientific evidence are growing. Relevant questions to be addressed are for example: What are the possibilities of home-based training from the patient and family perspective?What barriers of home-based training should be overcome and how can this be realized? In this mini-symposium, a parent will reflect on the need for home-based training. Thereafter, characteristics and evaluations of existing home-based training programs will be presented. The background and content of two recently developed interdisciplinary, home-based bimanual training programs will be discussed in detail. One program is based on an implicit motor learning approach whereas the other follows an explicit motor learning approach. This distinction was made in consideration of current evidence regarding parental stress as an adverse effect of home-based training. The concept of therapy-related parental stress will be introduced, followed by an explanation of the clinical approach to minimize therapy-related parental stress in these specific home-based training programs. We will end with an interactive discussion with the audience regarding the chances and challenges of home-based training in children with unilateral CP from a family, clinical and scientific perspective.
Chair: Prof. dr. R.J.E.M. (Rob) Smeets, Professor in Rehabilitation Medicine and physiatrist
Speakers: Laura Beckers, Rob Smeets, Yvonne Janssen-Potten, Jan van der Burg, Eugene Rameckers, Pauline Aarts, Joris Verweij
- General introduction - Prof. dr. Rob Smeets, Professor in Rehabilitation Medicine and physiatrist, Maastricht University, Maastricht, Netherlands
- The need for and possibilities of home-based training from a family perspective - Joris Verweij Parent of a child with CP
- Characteristics and evaluations of existing home-based training programs - Yvonne Janssen-Potten PhD, Research coördinator, Adelante, HOENSBROEK, Netherlands
- Relevance and content of two interdisciplinary, home-based bimanual training programs - Laura Beckers, PhD candidate, Maastricht University, Maastricht, Netherlands
- Therapy-related parental stress: how to keep it low during home-based training? - Jan van der Burg PhD, Health care psychologist/remedial educationalist, Sint Maartenskliniek, Nijmegen Netherlands
- Interactive discussion - Eugene Rameckers PhD, Senior researcher Adelante, Hoensbroek, Netherlands & Pauline Aarts MD PhD, Head department of pediatric rehabilitation and researcher Sint Maartenskliniek, Nijmegen, Netherlands
B5. Mini-symposium: Individualized training for residents in rehabilitation medicine: A new approach by Klimmendaal-Radboudumc-Rijnstate-Sint Maartenskliniek-Tolbrug (OOR-ON)
Due to governmental policy, training of residents in rehabilitation medicine should be shortened. This was the start to think about a new training program for our residents. Our goal was to develop a training which is challenging, future-proof and brings out the best of residents, trainers and the involved rehabilitation centers and hospitals. Due to the individualization of the postgraduate training, the starting point was to guarantee a basic profile and we wanted to offer space for further individualization. Together with the trainers and trainees, we analyzed the entire program and adjusted it so that the basic program is the same for everyone. After this a specialization is possible for neurologic, orthopedic, hospital and child rehabilitation. Next to this we offer three scientific profiles: an educational, managerial or patient centered research profile, with tailored made programs for the resident. During this mini-symposium we will explain our program and the profiles.
Chair: Ilse van Nes, physiatrist, Dept. Of Rehabiliation, Sint Maartenskliniek Nijmegen
Speakers: Imelda de Groot, Petra van Kampen, Gery. Bos4, Henk Hendricks5, D. van Duijnhoven2, A. Zielman6
- General introduction - Imelda de Groot MD PhD, physiatrist, Dept. Of Rehabilitation, Radboudumc, Nijmegen.
- Basic part of the program - Petra van Kampen MD PhD physiatrist, Rehabilitation Center Klimmendaal, Arnhem / Gery Bos MD PhD physiatrist, Rehabilitation Center Tolbrug, Den Bosch
- Specialized part of the program - Henk Hendricks, physiatrist, Dept. Of Rehabilitation, Rijnstate, Arnhem
- The scientific profiles - Hanneke van Duijnhoven, physiatrist, Dept of Rehabilitation, Radboudumc, Nijmegen
- Experiences of a resident - Anna Zielman MD, resident, circuit East Netherlands
B6. Mini-symposium: eRehabilitation: development, evaluation and implementation of eHealth in rehabilitation
The use of e-health grows rapidly, also in rehabilitation care. eRehabilitation has the potential to support people’s self-management, by offering innovative solutions for the delivery of information, the monitoring of relevant aspects of health status, the provision of tailored advice and treatment and interaction with health care providers and peers. Successful development, evaluation and implementation of eRehabilitation is a constant challenge that often requires non-conventional approaches. The development of eRehabilitation is a co-creation process in a real life setting including all relevant stakeholders, e.g. clinicians, patients and their caregivers, developers, ICT-departments and supervisory bodies. To contribute to the evidence, eRehabilitation research is eminent but often demands research methodologies other than conventional methods including product iterations and action-directed research methods. For successful and sustained adoption of effective eRehabilitation a structured implementation strategy is a prerequisite. This mini-symposium brings together different experts from the field of eHealth (in rehabilitation) to share perspectives and experiences with professionals working in the field (e)Rehabilitation.
- To present and discuss
- eRehabilitation and challenges for development, evaluation and implementation
- The co-creation with relevant stakeholders in a real-life setting
- The evaluation of the effectiveness of eRehabilitation
- The use of telemedicine in rehabilitation
- Implementation strategies for eRehabilitation
Chair: Jorit Meesters, PhD, senior researcher, LUMC, The Hague University of Applied Sciences, Sophia Rehabilitation Center, Leiden and The Hague, The Netherlands.
Speakers: Jorit Meesters, Martijn van der Ent, Marthe Ford, Marit Dekker, Leti van Bodegom-Vos
- Co-creation with different stakeholders in a Living lab: developing in a real life setting - Martijn van der Ent MSc, The Hague University of Applied Sciences, Sophia Rehabilitation Center, Leiden and The Hague, Cue2Walk International, WeGo-Out International, The Netherlands.
- Evaluating eRehabilitation: eHealth for sleep disorders after acquired brain injury in a RCT - Marthe Ford MSc, PhD-candidate, psychologist, Heliomare rehabilitation center, Wijk aan Zee, The Netherlands.
- Telemedicine in rehabilitation - Marit Dekker PhD, researcher, Roessingh Research and Development, Enschede, the Netherlands.
- Implementing eRehabilitation: strategies in practice - Leti van Bodegom-Vos PhD, assistant professor, LUMC, Department of Biomedical Data Sciences, Leiden, The Netherlands.
- Plenary discussion
B7. Mini-symposium: Neuropathic pain among people with spinal cord injury: innovations in assessment and treatment
Neuropathic pain (NP) is one of the most severe secondary health conditions among people with spinal cord injury (SCI). With a pooled prevalence of 53%. NP is not only highly frequent, but it is also highly treatment-resistant. It is rated by people with SCI as one of the health problems with the strongest impact on their participation and quality of life. NP is the pain that “gives the doctor a headache”. The etiology of NP is complex, which hampers the development and application of effective treatments. International consensus on the classification of subtypes of NP has emerged only recently. The assessment of NP is limited, because it is mainly based on patient’s self-report. Recently, more objective assessments of NP, such as quantitative sensory testing (QST) systems, are emerging. Furthermore, in medical rehabilitation, treatment of NP is strongly focused on medication. Medication, however, is often only partly effective and can bring serious side effects. A wide range of non-medical treatments, some “alternative” or “controversial”, are used by people with SCI, but information on this use and the effectiveness of non-medication treatments of NP is largely lacking. This mini-symposium highlights developments in the assessment and non-medical treatment of NP after SCI.
Chair: J.M. Stolwijk-Swüste MD PhD, Rehabilitation centre De Hoogstraat Utrecht Netherlands
Speakers: Janneke Stolwijk-Swüste, Albère Köke, Charlotte van Laake - Geelen, Marcel Post
Rehabilitation center De Hoogstraat, Utrecht, Netherlands
2Adelante Hoensbroek and Maastricht University Medical Center (MUMC+), Hoensbroek, Netherlands
3University Medical Center Groningen and a senior researcher at the Center of Exc, Utrecht, Netherlands
- Patients’ perspectives on pain after SCI - Charlotte van Laake MD, rehabilitation physician, Adelante Hoensbroek and Maastricht University Medical Center (MUMC+), Hoensbroek, Netherlands
- Use of non-medical treatments for NP after SCI - Marcel Post, PhD, professor of SCI rehabilitation, University Medical Center Groningen and a senior researcher at the Center of Exc, Utrecht, Netherlands
- Quantitative Sensory Testing in neuropathic pain - Albère Köke, PhD, physical therapist and senior researcher, Adelante Hoensbroek and Maastricht University Medical Center (MUMC+), Hoensbroek, Netherlands
- Cannabis and topical creams in treatments of NP after SCI - Janneke Stolwijk-Swüste, MD PhD, rehabilitation physician, Rehabilitation center De Hoogstraat, Utrecht, Netherlands
B8. Workshop: The Ronnie Gardiner Method, sets the brain in motion!
In addition to Ronnies keynote lecture during the morning program, Ronnie Gardiner and Mariken Jaspers will take the participants a good step further. In this workshop they will demonstrate how RGM is applied in the daily neuro-therapeutical practice. They will explain and show how the method can be adapted to different target groups, different levels and therapeutic objectives. Obviously they will link the method to the present scientific insights which all support the use of music, rhythm and a multimodal approach as powerful drivers of rehabilitation where it comes to brains affected by trauma or by a chronical progressive condition. Mostly performed in group sessions, but also one-on-one, patients consider RGM to be hard work and as well as fun. The latter unlike many neurological interventions. This is an important reason for high compliance rates. In order to personally experience the effects of combining rhythm, music, movement and speech, the participants will be invited to join in a few challenging exercises. This will help understand why your target group may benefit from the RGM.
Ronnie Gardiner, keynote speaker
Mariken Jaspers, (neuro)physiotherapist
Mariken Jaspers has over 30 years of experience working as a self-employed (neuro)physiotherapist. She is specialized in Parkinson’s disease (PD) and was co-writer of the first guideline for the treatment of PD by physiotherapists in the Netherlands. She was also one of the first physiotherapists involved in ParkinsonNet, a concept which nowadays is being copied in many other countries worldwide. Mariken was trained by Ronnie Gardiner in London and became master RGM-practitioner in 2013. Since 5 years she uses RGM as a welcome and useful addition to the regular therapeutical treatment of people with brain injury, PD, MS and early stages of dementia, in groups as well as in individual settings. Together with André de Jong she founded RGM the Netherlands to train physio-, speech-, music- and occupational therapists as well as (special needs) teachers and to promote the RGM and its possibilities in both healthcare and education in the Netherlands and other European countries.