Prof. Dale Corbett, FCAHS
Stroke Recovery and Rehabilitation in Canada: The Canadian Partnership for Stroke Recovery Experience
Dale Corbett is Professor of Neurosciences at the University of Ottawa, Canada and Scientific Director of the Canadian Partnership for Stroke Recovery. Prior to his work in stroke recovery and rehabilitation, Professor Corbett did pioneering work on the protective effects of long duration hypothermia now used in cases of cardiac surgery and perinatal asphyxia. His most impactful discoveries concern the importance of early rehabilitation. He identified a time-limited “critical period” after stroke when the brain is most receptive to rehabilitation. His highly translational research has also revealed the potential of high intensity training in combination with environmental enrichment and exercise for achieving greater functional recovery. Professor Corbett has played a major role in advancing stroke recovery and rehabilitation research and training in Canada and on the international scene as a key contributor to the international Stroke Recovery and Rehabilitation Roundtable. His research excellence has been recognized through numerous awards including an Alfred P. Sloan Fellowship at Harvard University and a Senior Canada Research Chair in Stroke and Neuroplasticity. He was the first recipient of the Canadian Stroke Network’s Paul Morley Mentorship award for his outstanding contributions in training the next generation of stroke researchers.
Marike van der Schaaf PhD
The Post Intensive Care Syndrome, Right Care: what, when, and where?
The advancements in critical care medicine result in lower mortality rates and thus a growing population of survivors of critical illness. As a result, each year, millions of people are discharged back to the community. However, many intensive care unit (ICU) survivors experience physical and cognitive impairments, and mental health problems after discharge from the ICU, known as post-intensive care syndrome (PICS). These impairments are associated with long-lasting restrictions in daily functioning, participation problems and reduced health-related quality of life. An admission to an ICU can also negatively affect family members, referred to as PICS- Family.
The recognition of long-term consequences for ICU survivors and their families is a growing concern. In addition to the ongoing impact on patients, post-ICU impairments are a major burden for families and for society, with increased healthcare utilization and high rates of institutionalization and increased risk of job loss. With respect to the high prevalence of complex and severe impairments and functional limitations, ICU survivors and their families should be considered as an important target population for interdisciplinary rehabilitation care. This presentation will provide an overview of the consequences of critical illness for functioning and it’s risk factors. Furthermore, the current evidence regarding strategies to decrease PICS in the acute and in the chronic phase will be discussed.
Marike van der Schaaf (PT PhD) is Associate Professor Acute Care Rehabilitation and epidemiologist / physiotherapist at the Department of Rehabilitation Medicine, Amsterdam UMC (AMC) and the Amsterdam University of Applied Sciences. As a physiotherapist she covered the spectrum of physiotherapy from acute and critical care through outpatient care. She completed a clinical epidemiologist Evidence Based Practice Master of Science (Cum Laude, 2004) and her PhD on Functional Recovery after Critical Illness (2009), both with the University of Amsterdam. Her research theme focusses on the development of rehabilitation interventions for frail hospitalized patients in the transitions of care during and after hospital stay. In collaboration with researchers, health professionals, lecturers and patients, new developed knowledge is actively implemented into health care and education.
Prof. Anne Visser MD & prof. Wilco Achterberg MD
The Rehabilitation Landscape is changing; a call for collaboration?
More and more people need rehabilitation care due to a growing population of elderly, with more than one chronic illness leading to functional limitations, and because more and more people have to recover after an (sub)acute decline in function, often associated with an hospital admission. Health insurers and policy makers are concerned about the growth of rehabilitation care, and future costs. One of the strategies of policy makers is to try to make very distinct definitions of care products that may overlap- Medical Specialist Rehabilitation, Geriatric Rehabilitation, and temporary/respite care, also known as ‘Eerste Lijns Verblijf’ (ELV). Interestingly, other health care systems in the world have to take care of the same patients, but have other definitions of their products. In the Netherlands, the Medical Specialist Rehabilitation mainly provides outpatient care and focuses on achieving participation goals, in a population that is usually not very frail, and not very old. Geriatric Rehabilitation focuses on older and more vulnerable patients, with usually less complex participation goals. In theory these two care products should be adjacent and complementary, but there is a large regional variety in collaboration practice between Geriatric and Medical Specialist Rehabilitation in the Netherlands, and not in all regions this is optimal. In this lecture, we will try to specify what Geriatric Rehabilitation is, based on a recent European consensus study. Then, we will use that as the basis for how this defines the collaboration opportunities for the Medical Specialist Rehabilitation in care, research and training.
Prof. Anne Visser-Meily is head of department Rehabilitation, Physical Therapy Sciences and Sport, UMC Utrecht and head of the Center of Excellence for Rehabilitation Research, the research- and innovation center for rehabilitation of Brain Center, UMC Utrecht and De Hoogstraat Rehabilitation. The research focuses on ways to support autonomy, self-management and participation of patients and relatives with Stroke, ALS and SMA, Brain based Developmental Disabilities (CP) and Spinal Cord Injury, with a specific focus on the role of personal and environmental factors, cognition, and physical health (physical activity, sleep and nutrition). Patients and relatives are involved in all aspects of all research. www.kcrutrecht.nl; @AnneVisserMeily
Prof. Wilco Achterberg is an elderly care physician, and a professor of elderly care medicine at Leiden University Medical Center. He leads a research team in geriatric rehabilitation, is part of the Special Interest Group Geriatric Rehabilitation of the EUGMS, and part of the EUGMS geriatric rehabiltation Consensus team.
Martijn Klem MSc
Between autonomy and cooperation in rehabilitation care
A physician who independently diagnoses and designs the right therapy is one of the fundaments under our rehabilitation care. This autonomy is under siege. Openly or manifestly, health insurers, industries and managers exert pressure with their focus on efficiency, their shareholders and their financial incentives. It would be wrong, however, to defend ‘autonomy’ at all costs or to confuse it with ‘stand-alone practice’. Apart from their own expertise, rehabilitation physicians can benefit from the evidence and practice-based conclusions of their fellow physicians, of paramedics, patients and researchers. There is a world to win here. It takes too long before proven methods are being implemented at each rehabilitation centre. When we observe differences in treatments to similar patients, there is a need to compare these therapies to those of colleagues. When we observe that guidelines are insufficiently followed, there is a need to discuss how we can improve implementation. When we observe advantages of both specialisation and local care, there is a need to openly discuss when and how we cooperate in delivering the right care at the right place.
This keynote lecture is a plea for commitment to structural cooperation and transparency in rehabilitation care. We could significantly improve the quality of our care, if physicians dare to cooperate. This plea is illustrated through the trial and error process of CP-Net. This national network unites physicians, paramedics, patients and researchers in order to improve care and support for people with cerebral palsy. This keynote lecture shows this struggle in cooperation by highlighting its bottom-up approach and the development of instruments like the knowledge broker network, the CP register and the tripartite
Martijn Klem MSc is CEO of Revalidatie Nederland, the Association of Rehabilitation Providers in the Netherlands. Martijn is one of the founders of CP-Net, the network of patients, professionals and researchers that aims to ensure state of the art care to everyone with cerebral palsy in the Netherlands. Before joining Revalidatie Nederland in 2018, Martijn was CEO of BOSK, the Association of People with Congenital Physical Disabilities. He has published numerous articles on participation in research and rehabilitation care.
Esther Kruitwagen MD
Keys to success in implementing remote monitoring to support multidisciplinary care: an e-health example of personalized ALS/MND care
EHealth can stimulate personalized care by optimizing the timing and content of care and patient participation. Keys to success of (a) successful implementation of eHealth will be presented.
The current model of multidisciplinary ALS care presents unresolved access issues for patients with ALS and comes with a considerable burden for these patients and their caregivers. A tailored eHealth care process was developed for ALS care which consists of an interactive eHealth application for self-monitoring, automated alerts, personalized feedback and tailored planning of appointments. ALS patients referred to the multidisciplinary ALS care team of the academic hospital in Utrecht, were invited to use the tailored eHealth care process. This innovative eHealth care process is appreciated by patients as well as professionals and provides patients increased control over their care and professionals efficient consultations. Telemonitoring (ALS Thuismeten en Coachen) is now part of daily care for ALS, PSMA and PLS patients in the UMCU. Analysing monitoring data creates a longitudinal database fit for research purposes. Additionally, a social cost-benefit analysis showed that is pays to invest in this project. Next step now is nationwide implementation of ALS home-monitoring and coaching.
In rehabilitation medicine, we must take more advantage of technology, eg telemonitoring, to identify and implement solutions to improve care.
Esther Kruitwagen-van Reenen works as a physician Rehabilitation Medicine at the Department of Rehabilitation, Physical Therapy Science & Sports of the University Hospital Utrecht. Specific topics of attention in her work are neuromuscular diseases, in particular ALS and SMA. She is involved in several research- and innovative projects to improve daily care for ALS and SMA. Among which the implementation of the eHealth application ‘Thuismeten en Coachen’. In the center of Excellence for ALS care, she is coördinator of the ‘Zorgnetwork project’ and member of the organizing committee of the yearly held multidisciplinary MND- congress. As a medical advisor of the patient association, she gives lectures on rehabilitation care for patients and professionals. She’s involved in the development of several Guidelines for rehabilitation care (Duchenne, ALS). Additionally she’s conducting a doctorate research into Participation and Quality of Life of patients with motor neuron disease.
Prof. Niels Chavannes MD
What solutions does eHealth offer us in practice?
eHealth has been hyped a lot, and there is a plethora of applications available, but a sound scientific approach towards eHealth is often lacking. The National eHealth Living Lab (www.nell.eu) is the (inter)national knowledge platform that brings together scientists, patients, healthcare providers, regulatory bodies and entrepeneurs, aimed at revealing the best solutions in practice. Over 120 eHealth projects are currently running on this platform, and this presentation will provide you with a flavor of what’s on offer, good and bad examples, and a framework for implementation of eHealth applications that do work.
Prof. Dr. Niels H. Chavannes MD, PhD, graduated in Medicine at Maastricht University in 1998. He combined his specialization as a Family Physician (2003) with several diagnostic and therapeutic studies in primary care, resulting in his 2005 PhD thesis: “Tracking and treating COPD in Primary Care: An integrated approach to diagnosis and therapy” at the CAPHRI Research Institute of Maastricht University, the Netherlands. In Rotterdam he was involved in setting up an innovative multidisciplinary health care center in a deprived area since 2003, and worked there as a Family Physician for four years. In 2006 his team received the National Public Health Stimulation Award (2006) for the Kroonluchter Project, implementing a highly successful integrated COPD management program. In 2008, this was followed by two years as a Consultant Family Physician at United Family Hospital in Shanghai, China, combined with an Assistant Professorship at Leiden University Medical Center. In 2010 he returned to the Netherlands as an Associate Professor, coordinating several (inter)national clinical research projects, and teaching on chronic disease management, eHealth and mHealth applicability, therapy adherence, and smoking cessation strategies. In 2015 he was appointed as a Full Professor of Primary Care Medicine, Strategic Chair of eHealth Applications in Disease Management, and in 2016 he became Head of Research at the Department of Public Health and Primary Care, Leiden University Medical Center. In March 2018 he established the National eHealth Living Lab, that brings together patients, healthcare providers, designers, programmers and researchers in a user-centered design environment to co-create better tailored eHealth applications on national scale. He enjoys working as a part-time Family Physician in his residence Zeist, the Netherlands, and is the Vice-Chair of the Dutch Asthma and COPD Advisory Group (CAHAG) and the National Advisor of the Dutch Action Program on Chronic Lung Diseases of the Lung Alliance Netherlands (LAN).
He published over 195 peer-reviewed articles on topics like eHealth and mHealth, adherence, rehabilitation, asthma, COPD, smoking cessation, self-management and disease management programs in primary care. He contributed to 17 books as first author and 6 books as second or last author. He has been a member of over 60 different committees and raised over € 30 million in funding over the past 15 years.
Programme overview DCRM